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A 21-month-old girl with a unique disease’s relatives are left wondering why their demand for a moment nurse’s appointment was turned down. Goldie doesn’t swallow or eat, so a system is needed to remove her liquid, and her kids have to do it for her up to 40 times an hour. Goldie takes arrest treatment. She doesn’t hold up her head or remain. She requires a feeding tubes and air because she can forget to breathe while she is sleeping. She needs to have someone stay next to her in the car because she has an untreated unusual disease that requires up to five sessions per week at B. C. Children’s Hospital. Despite her sophisticated medical requirements, the territory has denied them access to a day nurse. ” If we don’t get an appeal and don’t get nursing funding, it would be the most critical appointments ( which ) is all we’d be able to do”, mother Michelle told Global News. Additionally, many of her remedies are paid for because they are not covered or funded. And also, if I had to lose my job because I couldn’t work, our health insurance wouldn’t be able for her to have a lot of treatments” .2: 05
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They told Global News that the program has flaws because Goldie would receive nursing care if she were to be cared for by develop parents, which they would not consider. ” The foster family would receive between six and$ 8, 000 a month tax free as income”, dad Jeff said. ” And then additionally, they’re often given up to 16 hours of nursing coverage, government-funded “.Michelle said this is the heartbreaking part, as that means parents have to make the agonizing decision between keeping their child or keeping their home and having a roof over their heads and food in their stomachs. ” I think that no parent should ever have to make that decision”, she said. Jeff and Michelle say they are hoping to appeal the decision to not be given why they were denied a morning nurse. ” She’s a little medical mystery and marvel that we love so much”, Michelle said. ” Who’s not going anywhere — we won’t be giving you up, sweet girl” .We’ll fight till the end for you. ” &, copy 2024 Global News, a division of Corus Entertainment Inc.